It’s been a tough 18 months for the Emery family, who have been faced with not one but two deadly diseases.
Faye and Luke and daughters Eva and Mia, who live in Cawston, have been coping with breast cancer and cystic fibrosis.
They are battling through it and devoted father and husband Luke is now in training to run the London Marathon to raise thousands of pounds for the Cystic Fibrosis Trust in the hope of giving his baby girl a brighter future.
Faye said: “I’m very proud of Luke. He decided to do the marathon after a few weeks of feeling he could not do anything to make Eva better.”
The family’s nightmare began when Faye, 33, was diagnosed with an aggressive form of breast cancer in 2009. She was pregnant and had to have chemotherapy despite being warned she may lose the baby.
Eva was born on March 2 last year and when she was five weeks old she caught an infection and was taken into hospital, where the doctors confirmed she had cystic fibrosis.
Faye, who is now in remission, said: “It was pure bad luck. There is a history of cystic fibrosis in my family. Three of my cousins had it and two of them died form it.”
Eva has to take medication and have daily physiotherapy. Her internal organs become clogged with thick mucus resulting in chronic infections, inflammation in her lungs and difficulty digesting food.
Around half the people with the disease can live to about 38 years of age.
Faye said: “We are petrified about what the future holds. I do everything I can to help her but she still gets poorly. It’s so upsetting.”
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She is so happy though and she is the easiest baby in the world.”
In a cruel twist of fate, the type of cancer Faye had is genetic and her family has a history of ovarian cancer. Eva, and older sister Mia, who is two-and-a-half, could also carry the same gene.
Faye, who is having a full hysterectomy this year and has been offered the chance to have a double mastectomy, said: “There is a 50/50 chance the girls might have it. They can be tested when they are old enough to decide for themselves, although it might be better not to know.”
All the family will be travelling to London on April 17 to cheer Luke, 33, on during the marathon.
Luke said: “The thought that we might lose Eva scared us very much so I chose to apply for a place on the cystic fibrosis running team. I know it will be a challenge, especially as I have not run any great distances before. But the knowledge I will be raising funds to help Eva look forward to a brighter future will spur me on to the finish line.”
Luke is hoping to raise £3,000 for the Cystic Fibrosis Trust. To sponsor him visit www.uk.virginmoneygiving.com/lukeemery-cysticfibrosis-run-for-eva.