Church Lawford couple battle to give young son his independence

William Lamont pictured with his mum, Emma Hawkins. NNL-160927-171027009
William Lamont pictured with his mum, Emma Hawkins. NNL-160927-171027009

A couple from Church Lawford are fighting to give their young son his independence by raising money to renovate their home.

Emma Hawkins and her partner Paul Lamont need to fundraise just over £23,000 to provide a ground-floor bedroom and wetroom for three-year-old William.

William has a rare genetic disorder called Kleefstra Syndrome, which means he is unable to stand and walk.

He also has a severe intellectual disability and cannot communicate verbally.

He now weighs 18kg and is above the average weight for his age - making carrying him upstairs a difficult and potentially dangerous task.

Emma said: “The build would have a huge impact on us. We are really, really struggling at the moment.

“I also think William will make more progress if he has this ground-floor living space as it will give him some independence.

“He’ll be able to let us know more easily when he needs to go to the toilet or go to bed, so it will help with his communication too.

“He’s such a happy little boy anyway but this will make him even happier and us happier and our lives would change dramatically for the better.”

Emma explained that they have received a disability funding grant which covers part of the cost of the build but they need to find the remaining £23,000 themselves.

She added that it will allow William to explore his home environment freely and safely and have friends of all capabilities over to play.

The family have organised a fundraiser at Church Lawford village hall on Sunday, October 16 from 3pm to 5pm.

There will be afternoon tea and a raffle for the adults and fun activities such as face painting and princess hair dressing for children.

To make a donation, visit: www.justgiving.com/fundraising/williams-independance

Any person or business wishing to donate a raffle prize or hold their own fundraiser to help William can contact Emma by emailing: emma_1984_4@hotmail.com