Rugby boy with rare condition to take on ‘miles for muscles’ challenge with mum

Hayley and Tommy are running a mile of a marathon to raise money for Muscular Dystrophy UK

Hayley and Tommy are running a mile of a marathon to raise money for Muscular Dystrophy UK

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A determined 10-year-old boy with an extremely rare muscle-wasting disease is taking on a ‘miles for muscles’ challenge to raise money for charity.

Tommy and mum Hayley Lloyd will be completing one mile of a 26.2 mile relay marathon on Sunday August 30 for Muscular Dystrophy UK.

Hayley and Tommy are running a mile of a marathon to raise money for Muscular Dystrophy UK

Hayley and Tommy are running a mile of a marathon to raise money for Muscular Dystrophy UK

There is only one other person in the UK with Tommy’s form of muscular dystrophy, which affects his muscle mass and will eventually lead to him relying on a wheelchair.

The duo, from Bilton, will be joined by 30 people on the day and the event has been arranged by Hayley’s friend Martin Hywood, who also has muscular dystrophy.

Tommy said: “I’m really excited about doing my mile. My mum has spray painted my scooter in superhero colours in case I can’t run or walk it all. I think I might be even quicker than my mum if I use my scooter!”

Hayley, 40, said: “Tommy won’t be able to run a mile as his legs won’t be strong enough for this. I’m hoping he’ll be able to run some and walk some of the distance.

“I may have to carry him, but we don’t mind. We’re proud to take part.

“It has been arranged by my friend Martin Hywood who has muscular dystrophy himself. He will walking the last mile with all of us. This will be very tough for him as he can only just walk and will be totally exhausted by the end.

“Two people are doing the marathon distance in total, one running and one cycling within 90 minutes. Everyone participating is friends or has links with the MD community.

“There are four people with MD doing a mile - Martin, Tommy and two others who are in wheelchairs. Tommy is the only child.”

Hayley added: “I am very proud of Tommy for taking part. He will love being part of the whole team and although I know it will be a struggle physically, I know he’ll enjoy the day. As he always says to me about my running ‘never give up mum, never give up’.”Tommy and Hayley will complete the challenge wearing superhero outfits - a symbol of their positive outlook and drive.

There is a target of £6,000 for the event and Hayley and Tommy have already raised £500 towards this through Tommy’s bath of beans event at Tesco in Rugby a few weeks ago. Hayley has raised £1,700 for MD UK so far this year.

To sponsor Hayley and Tommy, go to www.justgiving.com/Treble4Tommy/