Rugby man raising funds in honour of dad who died of rare disease

Stephen Lovell who is raising money and awareness of a disease which took the life of his father Roger.
Stephen Lovell who is raising money and awareness of a disease which took the life of his father Roger.

The family of a much-loved man who died of a rare brain disease are raising awareness and funds in his honour.

Roger Lovell was 58 when he lost his battle against a disease that affects just one in a million people.

Roger Lovell.

Roger Lovell.

His son Stephen, who works at Datagraphic Ltd in Rugby, said: “My dad started complaining of blurriness in his eyes around August 2012.

“He lost his sight completely in October. My dad then lost all sense of co-ordination and started to have so much trouble doing basic tasks like getting ready, walking and even putting food onto his fork.”

Roger was admitted to hospital and told he had Sporadic Creutzfeldt-Jakob disease.

“We were able to get him home and care for him ourselves,” added Stephen.

“But because there was very little knowledge about the disease and how to care for it, we found this very difficult.”

He said his dad’s symptoms were loss of sight, loss of speech, loss of control of the bowel, hallucinations, no mobility and loss of being able to swallow food and drink.

Roger’s wife Helen, twin sons Stephen and Andy and daughter Catherine cared for him at home until he died two weeks after diagnosis in November last year.

They have now raised more than £5,000 for the CJD Support Network through a football tournament, half marathon and fishing trip for girls.

Stephen said: “We are looking for more teams to come forward and take part in the football match on Tuesday, August 27, at Yardley Power League in Birmingham.”

If anyone wants to sponsor or donate, visit www.justgiving.com/roger-lovell or email stevelovell90@gmail.com