A baby girl who was born with half a heart is waiting for a life-saving operation she has a 50-50 chance of surviving.
Six-month-old Jesse-Renee Stanley has a rare heart condition called hypo plastic left heart syndrome.
She had her first surgery within hours of being born and has been in and out of Birmingham Children’s Hospital.
Now her parents Jodie and Stephen, who live in New Bilton, want to give something back to the people who helped saved her life.
“Without the hospital our daughter wouldn’t be here,” said Jodie.
“At 15 hours Jesse-Renee had her procedure and at two weeks she was fitted with a pacemaker.”
At 15 hours Jesse-Renee had her procedure and at two weeks she was fitted with a pacemakerJodie Stanley
Jodie found out something was wrong with her daughter at her 20-week scan.
“It’s a very rare condition,” she said.
“But the hospital has been amazing and Jesse-Renee is a wonderful little girl who is always smiling.”
While at the hospital, the family can stay in accommodation provided by the Ronald McDonald House Charities.
“Jesse-Renee stopped breathing recently and I had to call an ambulance,” said Jodie.
“She got a cold and we do have to be very careful.”
So far, their daughter has had three open heart surgery operations and was due for keyhole surgery this week to stretch her veins.
“We are positive and hopeful for the future,” said Jodie.
“But we do know there will be certain activities Jesse-Renee will not be able to take part in. She will also be on medication for the rest of her life.”
She said the oldest living person with her daughter’s condition is 30.
“It’s a very complicated condition, but they can do extraordinary things,” she added.
They are now fundraising for the hospital so they can buy more equipment.
“There’s 11 of us taking part in the Dirty Weekend Rat Race in Peterborough,” said Jodie.
“It’s 20 miles and has 200 obstacles.”
The tough event takes place on May 9 and the team have been putting in a lot of training.
Jodie said: “It’s been quite hard for me because I’ve been in hospital. I’ve done my best though, running around the hospital trying to get some training in.”
She said thoughts of her daughter will get her to the end of the course.
“Jesse-Renee has been through so much in her short life,” said Jodie.
“I know we can do this for her and to help other children in need of special care.”
For more information or to sponsor Jodie, visit www.justgiving.com/Jodie-Farrell1/ or Jesse-Renee Charity on Facebook.