A TRUST set up in memory of a baby boy from Rugby who died of a rare genetic disorder is celebrating its fundraising success.
By using easyfundraising.org.uk, a fundraising shopping site, supporters of the Alex Camwell Tribute Fund have raised more than £1,000 since September 2009 to help organisations dedicated to the rare genetic disorder Spinal Muscular Atrophy (SMA).
Ian and Debbie Camwell from Rugby set up the fund after son Alex died of the genetic disease at only seven months old, having received the diagnosis just days earlier. Ian and Debbie found it hard to find information about SMA and they set up Alex’s tribute fund to raise awareness and to generate money for charities dedicat ed to offering support and carrying out research to find a cure for SMA. It also raises funds for the hospice where Alex was transferred to after his diagnosis.
Ian said: “We feel easyfundraising.org.uk is perfect as it enables our followers to support us without having to dip into their own pockets to donate or even give up much of their time.
We are ultimately working towards helping researchers to find a cure and will continue to raise awareness and funds for families which have been affected.”